Alyce Luna

Areas of expertise: Trauma informed care, patient-centered care, children with medical complexities and children with special health care needs, family and community engagement, cross-sector collaboration, equity, diversity and inclusion, systems improvement, disability rights, access to care, care coordination, rare disease advocacy

Bio: Alyce Luna is the mother of four children, all of whom have their own special health needs, including autism, epilepsy, learning disabilities, and a rare brain malformation. Her passion lies in bridging the gap between families and professionals and fostering equity in healthcare settings. Having life experience as a single mother and a married mother, and in a family blended not only by marriage but also by race and economic background, she believes that all are deserving of access to meaningful healthcare and related services. In addition to her lived experience, Alyce has a variety of professional experiences in healthcare including working with families affected by traumatic brain injuries by providing in home respite and supporting their activities of daily living, working as the Business Director of an assisted living home, and working in the corporate office of a local hospital system. She has collaborated with various health organizations on national, state, and local levels, and feels very grateful for any opportunity to help families and professionals navigate healthcare systems to support favorable health outcomes for all.

Experience

• Panelist for “Centering the Voices of People with Lived Experiences” at the American Hospital Association Accelerating Health Equity Conference, 2022
• Panelist for “Complex Care Core Competencies Curriculum Development Team” at the Nexus Summit, 2022
• Family Engagement Month Planning Team, Exceptional Children’s Assistance Center, 2022
• Family Leadership Conference Planning Committee, Exceptional Children’s Assistance Center 2022
• Institute Presenter, General Session Presenter, 71st Annual Exceptional Children’s Conference, NC Department of Public Instruction 2022
• National Consumer Scholar, 2021-2022
• Board of Directors for Amazing Grace Advocacy
• Family Partner with the North Carolina Department of Health and Human Services’ Division of Child and Family Well-Being, 2019- present
• Participant, Path for Children’s Complex Care Coalition of North Carolina (Path-4CNC), 2021
• North Carolina Commission for Children with Special Health Needs,  2021
• Planning for the “Care of the Whole Student”, North Carolina School Nurse Conference, 2019
• Consumer spotlight: A busy and exciting end to 2021, 2022