Exploring consumer engagement experiences: A research project co-led by the National Consumer Scholars

Consumer engagement is becoming a popular concept in healthcare, with organizations increasingly understanding the value in working closely with those they serve in order to improve their programs and outcomes. But what are the experiences of the program staff and consumers who take part in consumer engagement activities? A joint project between staff at the Camden Coalition and complex care consumers taking part in the Camden Coalition’s National Consumer Scholars program sought to learn more about on-the-ground experiences of consumer engagement, and to extrapolate those experiences into recommendations for the complex care field.

The authors used an online survey to collect responses from complex care consumers and from staff/providers at complex care organizations. Survey responses elucidated the importance of understanding consumers’ intrinsic motivations for participation, setting clear expectations and roles for consumer participants, and always closing the loop by sharing back the outcome of consumers’ work and input. Responses also highlighted the need for organizations to address common barriers to consumer participation.

This research project in-and-of-itself is intended as a replicable model for how organizations can benefit from consumer partnerships. The findings described in the report provide insight and guidance for how complex care organizations — and others — can and should build authentic and mutually beneficial partnerships with their consumer stakeholders.

Lessons from the Camden Coalition care team efforts to improve Healthy Days data collection
This brief examines the hurdles our care teams faced in their attempts to collect patient-reported data through the Center for Disease Control’s (CDC)…
Read More
Brief: Student homelessness in Camden City School District
This brief, a collaboration between the Camden City School District (CCSD), Nemours Children’s Health System, and the Camden Coalition, used our integrated data to show…
Read More
Guide: Talking to patients about the COVID-19 vaccines
This guide offers practical strategies for healthcare professionals who may encounter questions or concerns from clients/patients regarding the COVID-19 vaccines.
Read More
Exploring consumer engagement experiences: A research project co-led by the National Consumer Scholars
Consumer engagement is becoming a popular concept in healthcare, with organizations increasingly understanding the value in working closely with those they serve in order to…
Read More
A group of National Consumer Scholars smile for the camera at one of our annual conferences
Resilient communities through teamwork and health justice: The Camden Coalition’s 2020 annual report
Our main takeaway from the January 2020 release of the results of the randomized controlled trial that investigated…
Read More
2020 Annual Report Thumbnail
Leveraging Accountable Health Communities during the COVID-19 pandemic
The COVID-19 pandemic has shined a spotlight on the interrelatedness between social needs and health. As the pandemic continues to disproportionately impact communities of color,…
Read More

Stay Informed

Join our mailing list to get the latest updates sent right to your inbox from the Camden Coalition.

Sign Up