Nohora Gutierrez
Amplify speaker profile
Areas of expertise: Patient advocacy, caregiver and family advocacy, patient-centered research, multiple sclerosis research advocacy, diversity equity and inclusion
Bio: Nohora Gutierrez is a single mother of a disabled veteran, a caregiver of an elderly father with chronic conditions, a patient managing the invisible symptoms of Multiple Sclerosis (MS) for 15 years, and a 30 year retired Human Resources Analyst with a Master of Science in Industrial/Organizational Psychology living in South Florida over 50 years. As a lifelong learner, Nohora attended MS live events and webinars, in-person and virtual interactive support groups, and joined MS networks to participate in diverse MS research. Her goal evolved from individual level involvement in MS research to group level recruitment for a wider multifaceted inclusion and diversity approach in MS research participation. Her vast experience in utilizing the healthcare systems for her father, daughter, and herself have extensively broadened her passion for active community engagement as both a consumer and family advocate in organizations actively engaged in partnerships between healthcare systems and persons with lived experience in underrepresented communities. Nohora enjoys attending movie screenings, music concerts, local comedy clubs, and on a daily basis, practices guided meditation as well as completes multiple brain word games.
Experience:
- Science and Engagement Fair Panelist, Topic: The RIDE Council: Bridging the GAP Between Patients and Researchers, iConquerMS Summit, 2024
- Center to Advance Consumer Partnership Consumer Advisory Council, 2024-present
- Patient Testimonials, Introduction to Patient Experience, eLearning course, National Nurse-led Care Consortium, 2024
- M3 Global Research Panel
- Langone Health Study Advisory Group-CARE IN MS Study
- Consumer Perspectives Panelists, SIREN webinar Camden Coalition Care, Management RCT Study Findings, 2024
- Kessler Foundation Community Advisory Board
- Camden Coalition National Consumer Scholars, 2023-2024
- iConquerMS RIDE Council-LATINX sub committee
- Arthritis Foundation Patient Voice Panel
- AARP advocate for healthcare policy changes
- MS Activist, National Multiple Sclerosis Society